Hypermobility disorder affects hundreds of thousands in UK, but diagnosis waits average nearly two decades

Patients experience severe fatigue, chronic pain, and reduced work capacity, forcing career changes and social isolation due to delayed diagnosis and lack of support.

For decades, hundreds of thousands of people in the United Kingdom have lived inside bodies that hurt without explanation, their suffering dismissed or misread by a medical system that has yet to formally codify how to recognise Hypermobility Spectrum Disorder. HSD, a connective tissue condition rooted in faulty collagen, leaves joints unstable, muscles exhausted, and digestive systems strained — yet the average patient waits nearly two decades before receiving a name for what ails them. The condition disproportionately burdens women and those born into postcodes with fewer specialists, reveal

Hypermobility disorder affects hundreds of thousands in UK, but diagnosis waits average nearly two decades

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