In the long and uneven history of medicine's reach beyond its grasp, a six-year-old girl in China has become the quiet center of a gathering storm. Mei died approximately one week after receiving an experimental gene-editing infusion into her spinal fluid — a procedure her parents paid $800,000 to access — yet her death went unmentioned in the scientific literature that followed. Shanghai Jiao Tong University has now opened an investigation, confronting questions that extend far beyond one laboratory: who bears responsibility when ambition outruns accountability, and what is owed to the most v
Chinese University Probes Undisclosed Death in Gene-Editing Trial
A six-year-old girl died approximately one week after receiving an experimental spinal infusion of viruses for gene therapy targeting brain development.